Not Car related BUT Car guy related !!!
 

As a lot of you know I have been diagnosed with ALS.
A few of you know I have been given the opportunity to partake in a research study called Brain storm research study to find a cure for ALS. I am one of only 48 people in the United States to be involved in this study.
The procedure is they harvest some of my Bone Marrow then rework some of the cells from the Bone Marrow and in 24 days it is reintroduced ( injected ) back into my spine & 12 spots in my right arm.
After that I am back and forth to the hospital on specific dates & time to track the progress of the procedure .
Up to today there has been 3 visits to the hospital to do all the work up's for the start of the procedure.
Today we went in for the Bone Marrow Harvest.
All went well & am not hurting at this point but we will see what the morning brings.
We are hoping that this Research study will have " SHOCKING "
( just to keep it car related ) Results.
Not just for me / I feel in my Hart of Harts this won't cure me but maybe slow the progress of this Disease.
My hope is that this helps in some small way to cure ALS in the 30,000 +
people that are affected in the United States.

As a side note Research is finding that the single LARGEST individual group that is getting effected is for some reason the MILITARY :eek:

If you would like any information about what I know about ALS or would like to donate to the cure of this Disease email me at:
[email protected]

It's a little late to go to the garage now But in the morning it's back to my own form of " SHOCK THERAPY " :)

.

Re: Not Car related BUT Car guy related !!!
 

Keep up the fight Bill , were all pulling for you. MP

Re: Not Car related BUT Car guy related !!!
 

wishing you all the good luck possable...

Re: Not Car related BUT Car guy related !!!
 

hang in there Bill its not fun getting old but every day they find a new way to keep us going were with you

Re: Not Car related BUT Car guy related !!!
 

Mike:
Fitchburg is still up in the air right now will have to wait till it gets closer.
To see how I am doing.
But those donuts :eek: may just get me there !!!

I still have not sent you the envelope yet will try to get to it in the next couple of days.

Re: Not Car related BUT Car guy related !!!
 

Brother Bill: Margretha and I knew about the ALS, of course, but not about the study / treatment protocol. You and Lee are certainly in our prayers, and we will redouble them now for the Brain Storm study. You are a fine example for the study: warm hearted and ever the optimist....Our precious Lord has a plan and we know the best is yet to come!!

Re: Not Car related BUT Car guy related !!!
 

NO WORRIES Bill ,,I,ll pay when I get there :D, hope to see you there though ! Prayers sent your way MP

Re: Not Car related BUT Car guy related !!!
 

My prayers and those of my mens group from church are with you.

Re: Not Car related BUT Car guy related !!!
 

I am retired from doing 30 years medical research at the University of Washington. People like you are EXTREMELY important to further scientific understanding of diseases. Thank you so much for your participation. Best of luck to you.

Re: Not Car related BUT Car guy related !!!
 

Bill, You are a good and generous man to volunteer your time & body for this study! I pray that all goes well for you. You will be in my prayers for sure.

Warm Regards,
Pat

Re: Not Car related BUT Car guy related !!!
 

Warm fuzzy vibes coming your way! You will get excellent treatment in the research program, at least that's my experience at John's Hopkins in two cancer research programs.

Re: Not Car related BUT Car guy related !!!
 

Thanks for your courage and contribution to eliminating ALS.

Re: Not Car related BUT Car guy related !!!
 

Bill: You are certainly in my thoughts and prayers as you and our Lord work on this problem. Lawson

Re: Not Car related BUT Car guy related !!!
 

Bill, we have never met,BUT I feel I know you well.
I hope for the best for you,and hope with all my heart that you get fixed,and thank you for you help.
Take care from down under.
lawrie

Re: Not Car related BUT Car guy related !!!
 

I applaud your courage and willingness to help others. I admire you.

Re: Not Car related BUT Car guy related !!!
 

Bill, I know you will do well, you have such a positive attitude about life. Some of the best therapy is to keep busy doing what you do best. Let us know if you want to take Sheba out for some exercise, we would love to meet up with you, Chuck S.

Re: Not Car related BUT Car guy related !!!
 

Such a great thing you're doing. Research is very important.

Re: Not Car related BUT Car guy related !!!
 

Chuck:
This is just a thought , only halfway through my 1 st, tea this AM
What about in say a month or two we look at something 1/2 way between us.
( Date / Time / Location to be determined later )
Some type of 2 day deal.

Boy my brain is on fire here must be the real tea not the decaf type.
We put out the request to the Barner to join us & charge say a $10.00
fee / donation to go to ALS research.
Do you think there would be any takers ??

Re: Not Car related BUT Car guy related !!!
 

Bill, if you and Chuck put a cruise together, I'll be happy to send in a donation. It's too cold up north, for this transplanted New Yorker, now that I'm a Floridian... ;) Vic

Re: Not Car related BUT Car guy related !!!
 

Take care Bill, I pray for you. Working in my shop is the best therapy.